Lily was diagnosed with Mito (Mitochondrial Disease) Mitochondrial diseases result from failures of the mitochondria, specialized compartments present in every cell of the body except red blood cells. Mitochondria are responsible for creating more than 90% of the energy needed by the body to sustain life and support growth. When they fail, less and less energy is generated within the cell. Cell injury and even cell death follow.
After I heard about this I felt such pain for her parents and wished there was something I could do to take it away for them. Take the pain that their heart feels. I offered to do their photos, because I felt it was one gift that I could give them to preserve this moment.
Lily is a really sweet baby she is the most beautiful blue eyes. Lily is very blessed because she parents that just love and adore her, as they would kiss her upon her head in between taking the pictures. You can really truly feel the love and and devotion they have have for their cherished baby girl. . Taking your pictures was sad at times because Lily would be coughing and sneezing from her asthma. Her parents told me that sometimes her legs and muscles get so weak that should be crawling in, her legs just give out and her head over the floor. As they talked about the how her lymph node is swollen in the back of her neck just broke my heart to hear this child being so sick. They said she’ll be strong one minute and then a little bit later just awesome and it really sick and weak. She got a fever during the session and they had to give her Tylenol through her feeding tube in her stomach because it could mess up her lungs if she swallowed it.
How are you sad it was Lily seemed upset and hurting, being that age so small and so hard to tell what’s wrong. My heart breaks for this family because being a mom so I just can’t imagine feeling that they are going through or knowing what to do feeling helpless most of the time. When your healthy child gets sick really sick with a high fever your scared. Can you even think how it would be to feel helpless as a parent and how none of it is in our control what’s so ever??
Only with a happy is a happy baby and smiling and laughing when she saw the ducks got excited when she saw the birds got excited.and a lot of things in the park made her smile and just be happy and that’s not me joy to see her happy even though she’s she’s suffering. Lilly was upset a few times during the photos. I didn’t know if she was hurting, suffering, in pain. I just didn’t know, but the thing I know is that I wanted to hold her in my arms and keep her safe or be able to take her suffering away as I watched her Mommy Alix hold her tight when she would get upset. As a mom we want to make our babies just be better. Our hearts long to make the booboo go away. They say a mother’s love is better than any medicine. It’s true. I could see Lily feel better being held and loved. The love they share for their baby girl Lily is something special. My heart just broke feeling helpless wishing there was something more I could do for them. I hope these photos will help comfort them during these hard times. I am so very blessed to have met this family. Thanks Jakeman family for letting me come and take Lily’s photos.
She is in my prayers