Jakeman 1 year old baby | Phoenix baby photographer

Lily was diagnosed with Mito (Mitochondrial Disease) Mitochondrial diseases result from failures of the mitochondria, specialized compartments present in every cell of the body except red blood cells. Mitochondria are responsible for creating more than 90% of the energy needed by the body to sustain life and support growth. When they fail, less and less energy is generated within the cell. Cell injury and even cell death follow.

After I heard about this I felt such pain for her parents and wished there was something I could do to take it away for them. Take the pain that their heart feels. I offered to do their photos, because I felt it was one gift that I could give them to preserve this moment.

Lily is a really sweet baby she is the most beautiful blue eyes. Lily is very blessed because she parents that just love and adore her, as they would kiss her upon her head in between taking the pictures.  You can really truly feel the love and and devotion they have have for their cherished baby girl.  . Taking your pictures was sad at times because Lily would be coughing and sneezing from her asthma. Her parents told me that sometimes her legs and muscles get so weak that should be crawling in, her legs just give out and her head over the floor.  As they talked about the how her  lymph node is swollen in the back of her neck just broke my heart to hear this child being so sick.  They said she’ll be strong one minute and then a little bit later just awesome and it really sick and weak. She got a fever during the session and they had to give her Tylenol through her feeding tube in her stomach  because  it could mess up her lungs if she swallowed it.

How are you sad it was Lily seemed upset and hurting, being that age so small and so hard to tell what’s wrong. My heart breaks for this family because being a mom so I just can’t imagine feeling that they are  going through  or knowing what to do feeling  helpless most of the time. When your healthy child gets sick really sick with a high fever your scared. Can you even think how it would be to feel helpless as a parent and how none of it is in our control what’s so ever??

Only with a happy is a happy baby and smiling and laughing when she saw the ducks got excited when she saw the birds got excited.and a lot of things in the park made her smile and just be happy and that’s not me joy to see her happy even though she’s she’s suffering. Lilly was upset a few times during the photos. I didn’t know if she was hurting, suffering, in pain. I just didn’t know, but the thing I know is that I wanted to hold her in my arms and keep her safe or be able to take her suffering away as I watched her Mommy Alix hold her tight when she would get upset. As a mom we want to make our babies just be better. Our hearts long to make the booboo go away. They say a mother’s love is better than any medicine. It’s true.  I could see Lily feel better being held and loved. The love they share for their baby girl Lily is something special. My heart just broke feeling helpless wishing there was something more I could do for them. I hope these photos will help comfort them during these hard times. I am so very blessed to have met this family. Thanks Jakeman family for letting me come and take Lily’s photos.
She is in my prayers

 


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  • Rachel Starchman - January 30, 2012 - 1:42 am

    Awwww….Leslie! These brought tears to my eyes :’) Absolutely beautiful work as always. You are one of the most kind and generous people that I know. I am so proud to call you MY friend. Thank you for doing this for my amazing friends. My heart is so full of gratitude, love and overwhelming joy. You are truly a woman of God. He blessed you with this AMAZING talent and you are doing exactly as He would have you do, sharing it with others. Love you lady! You rock!!!
    Shaun, Alix and Lily—I am so excited that you have these pictures. I know that you will cherish and love them, each and every day. You guys are AMAZING and so deserving of every single blessing that comes into your lives! Love you guys!!
    And for those of you that do not know the story,
    Leslie is a good friend of mine. We have known each other for 2 1/2 years now. This is the second time in the short time that we have known each other that she has stepped in and generously donated her own time and money to do photos for some of the most deserving people I know, two of my very best friends, and both of their baby girls have been afflicted with major health issues.
    She does it because she truly cares, loves unconditionally and has the biggest heart that I know. She read my blog post about sweet Lily and her diagnosis and promptly messaged me and offered to do the Jakeman’s photos for free. She did the same thing last year when my other very good friends, the Montgomery’s baby girl was in the hospital, on the edge of not making it. Miss Whitney K is a now a CDH survivor, but at the time she was on ECMO and was given a very slim chance of making it. Leslie stepped in and offered to do photos for them while their tiny baby lay in the NICU, unsure of whether or not she would make it. Leslie gave them photos to treasure forever.
    Leslie doesn’t just take pictures, she captures a moment, the memory, and the love that is shared in the people she photographs. Leslie is amazing, I wish I could hand her an award for being the most generous, talented, kind hearted, caring and loving person I know! You are truly awesome Leslie!

  • Alex jakeman - January 30, 2012 - 10:57 am

    Leslie, Thank you so so so so much for these precious pictures! They capture happiness and the joy in Lily’s face. We can have these pictures and look back and remember her joy and love for life as we face what is in store for our precious child. Thank you a million times over. You are an answer to a prayer!

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